Welcome
Upcoming Events
- 7/1/2008 - SMA Meeting - SMART WALK Countdown
Where: Millenium Airport Hotel 2040 Walden Avenue, NY 14225 681-2400 - 8/2/2008 - 5th Annual SMArt Walk for a Cure
Beavor Island State Park
The 5th annual SMArt Walk for a Cure will take place on August 2nd at Beaver Island State Park on Grand Island. We need you to help again this year find a cure for Spinal Muscular Atrophy. Please join us!
Download Walk Registration Form
Download Walk Registration Form
You need Adobe Acrobat Reader in order to view form. To download a free version click here.
Click Here to Download SMArt Walk Sponsorship Form
Parent List
Do you want updates on meetings, fundraisers, clinical trials? Are you interested in attending meetings? Would you like more information on services in your community? The WNY Families of SMA will be the distributor of information through our email system. If you would like to receive this information, please send an email to mboguhn@msn.com and enter the words "Parent List" in the subject area. The WNY FSMA will enter your name on to their confidential distribution list. We look forward to partnering with families and sharing our resources!
