Welcome
Upcoming Events
- 7/28/2009 - Monthly Meeting - Walk Talk
Millenium Airport Hotel 2040 Walden Avenue, NY 14225 681-2400 In the restaurant round table - 8/1/2009 - 6th Annual SMA Walk for a Cure
Beaver Island State Park - 8/22/2009 - Comedy Playhouse & Rob Lederman - Dandelions
tickets are at $25 each and there will be a 50/50 raffle and theme baskets table.
The 6th annual SMArt Walk for a Cure will take place on August 1st at Beaver Island State Park on Grand Island. We need you to help again this year find a cure for Spinal Muscular Atrophy. Please join us!
Download Walk Registration Form
Download Walk Registration Form
You need Adobe Acrobat Reader in order to view form. To download a free version click here.
Parent List
Do you want updates on meetings, fundraisers, clinical trials? Are you interested in attending meetings? Would you like more information on services in your community? The WNY Families of SMA will be the distributor of information through our email system. If you would like to receive this information, please send an email to mboguhn@msn.com and enter the words "Parent List" in the subject area. The WNY FSMA will enter your name on to their confidential distribution list. We look forward to partnering with families and sharing our resources!
